CDC

Birth Defects Surveillance Toolkit

CDC, in collaboration with the World Health Organization and the International Clearinghouse for Birth Defects Surveillance and Research, offers a Birth Defects Surveillance Toolkit for use by low- and middle-resource countries developing or strengthening birth defects surveillance programs.
 

WHO Guideline At-A-Glance: Optimal Blood Folate Concentrations for the Prevention of Neural Tube Defects

In April 2015, the World Health Organization (WHO) released the Guideline on Optimal Serum and Red Blood Cell Folate Concentrations in Women of Reproductive Age for Prevention of Neural Tube Defects. The purpose of the guideline is to define the level of red blood cell folate concentrations in a population that is sufficient for the prevention of neural tube defects.
 

Birth Defects COUNT Partner Newsletter

Sign up to receive semi-annual newsletters from Birth Defects COUNT, CDC’s global initiative to prevent neural tube defects, including highlights from global birth defects prevention projects, partner activities, and the latest science.

Center for Spina Bifida Prevention

PACT packet to promote healthy pregnancy

Food Fortification Initiative

Video: The Story of Folic Acid Fortification

Video: Folic Acid: The Best Thing Since Sliced Bread

Why Fortify? Prevent Neural Tube Defects

Economic impact of fortifying flour

How fortifying flour could be used in Europe to prevent NTDs:

• Overview
• Summary
• Annex

Fortify Grains to Prevent NTDs in Africa

To know if a country fortifies wheat flour, maize flour, and/or rice with folic acid, see the country profile on the FFI website.
For data on multiple countries, send a request toinfo@ffinetwork.org

Hydrocephalus Association

Detailed information on hydrocephalus

Free downloads of our booklets, fact sheets, questions to ask your doctor, webinar recordings, and educational videos. English and Spanish

The Hydrocephalus Resource Library is a collection of articles, resources, research studies, etc.

List of physicians across the US that treat children and/or adults with hydrocephalus.

List of Community Networks across the US and one in Nigeria.

Hydrocephalus Association WALK Schedule 2016 across the US.

International Federation for Spina Bifida and Hydrocephalus

Fortify Grains to Prevent NTDs in Africa

IF Policy Statement on Prevention of Neural Tube Defects and Mandatory Food Fortification

FORTIMAS: An Approach for Tracking the Population Coverage and Impact of a Flour Fortification Program

Act against Europe's most common birth defects: The right advice at the right time can reduce Neural Tube Defects now

Act against Europe's most common birth defects: One year on - Defining Neural Tube Defect prevention strategies in Europe

March of Dimes

March of Dimes global report on birth defects

World Birth defects day

Birth defects research

Birth defects & other health conditions

What's spina bifida?

International Clearinghouse for Birth Defects

National Birth Defects Prevention Network (NBDPN)

News Moms Need blog

Nacersano blog

Spina Bifida Association

Fact sheets in Spanish about Spina Bifida (SB)

Health information sheets

Resources for educators and parents of school-age children with SB

List of clinics that treat adults and/or children with SB

List of affiliated chapters and some support groups around the U.S

SBA online newsletter: SB Insights